Now Rhett and I have matching machines. The only difference is that mine is hooked up to oxygen.
The new CPAP is light years ahead of my old one. It has a memory card that keeps all sorts of info about my breathing. The creepy part is that it also has a modem. For at least the first month all info is beamed right to an office somewhere.
I took a four hour nap to break it in. Nice! The mask is very lightweight. It fits snug but comfy. I told the woman no heat, but she set it on 2 and showed me how to change it on the control panel. My MG instantly made me feel weaker with heat on.
The only STUPID thing I have found so far is that because the hose is heated, the oxygen has to be fed into the hose just before the mask. She said to use twist ties to hook the oxygen tubing to the hose, but that scratches me. No yarn here…I will try embroidery thread for tonight. Dumb design flaw. Most people probably have no idea why that’s a problem. Imagine your head and neck entangled in both a hose and tubing. Sigh…
I am still sick. Fever, sweating, earaches, sore throat, stiffness, aches and pains all over, snotty nose and now diarrhea. I am very ready to feel better! My head hurts sooooo bad. And I woke up with a killer thigh cramp. At least it was only on one side….the same side as the killer butt muscle pain 😦
Oh…I was chatting with a woman who worked in a hospital. We were talking about peripheral neuropathy and if it can affect my lungs. She says yes. I have been thinking it’s part of my problems lately. I need to find a neuro. Ten sighs………
I told everybody happy Rare Disease Day. The pharmacist was amused.
I got to right here when Rhett announced he is getting sick, feels terrible and is going back to bed. Oh, oh….now he has the cooties.