For the last few days, my hands were back to being very dehydrated. When they don’t have enough blood in the fingers, the numbness and tingling that plagues me 24/7 is magnified. But…when my fingers finally plump up to normal and stop looking pruney, then the rest of my body swells up fast.
I bet I gained somewhere between 5 and 10 pounds again. My abdomen is huge and I had to move out the buckles on my sandals. Sunday morning I woke up with my lips swollen way out.
I was very deep in a dream. Rhett was calling my name. It seemed to take forever to wake up. He had messed with his CPAP headgear so much that he wanted me to fix it. Sigh…..now he is asleep and I am wide awake at 5:30 AM….wishing I could barf.
Rhett goes in these cycles. I hate it when he feels the need to constantly wake me up. I think he just plain gets scared and needs reassurance. Of course that always seems to correspond to my cycles of when I am able to sleep deeply and get the most restorative sleep. Ten sighs….
I am still having pancreas/gallbladder issues. Yesterday there was a lot of pain there along with queasiness. Sometimes I had shooting pains that made me cry.
I feel like my body is always busy trying to fix things…but to improve one part makes several others go out of whack. It feels like a battleground. I feel sick and weary. My guts are not happy at all. My eyes seem to be stuck at the blurry setting. I am missing the good part of steroids more each day.
It was a fabulously gorgeous drive to church this morning! Leaves have popped out a lot the last few days. The grass is soooooo green!
Just as I got to the handicapped spot closest to the ramp down to church, a humongous SUV pulled into the spot. Two guys got out and literally ran down some stairs and into the building. I burst into tears. All the handicapped spots were taken and we had to park way down the lot. It seems like the more intense my pain, the further I need to walk. It took more than 15 minutes to get from the parking spot to the door via the ramp. I was soooooo sick and dizzy 😦
Church was good. I left after sacrament and Rhett stayed two more hours. On my way back to the parking spot was even worse, since it was uphill. I was alone, no one around, and burst into tears. So. Much. Pain.
I was really embarrassed when a guy appeared out of nowhere and asked if he could help. Turned out he was the highlight of my morning. I am glad he came along to distract me. I told him not to worry about me, but he came all the way over to the RV with me. Dang…it’s hard to jam the walker in the back door when I am so weak. Once I was sitting, I was better, and it was a gorgeous drive home.
I rested a couple of hours and made a chilled somen noodle salad for Rhett and I.
Rhett was all excited because an orthodontist drove him home 😛 That was the highlight of his morning. Poor Rhett. He has a bad and hurting tooth. This state doesn’t have dental benefits and we sure can’t afford a dentist. Good thing we had so much work done in NY…or we would be in worse shape now. One more thing to stress about. I wonder if we can volunteer to be guinea pigs at a dental school?
Ahhh…each time a burst of air comes along, there is a flurry of white petals from the trees outside my window. I am also seeing more bugs today than any other day so far. I love spring 🙂
I will love spring even more once I get the power chair. I have lived on this block for 9 or 10 months…and don’t even know what businesses share it with me. I am sooooo excited to see people’s flower beds, the library, the little shops and all that’s out there waiting for me to find it!
When I went to the ortho office last week there were lots of free magazines and newspapers that I had never seen before. One is called City Guide 2013. It tells the names and locations of neighborhoods, museums, restaurants and shows pictures of the ritzy shopping places that I am close to such as Trolley Square and City Creek. With a power chair I will finally have the ability to see inside. I am so psyched to participate in life again.
I will keep my fluorescent light/sun hat always aboard. I have also been visualizing a way to use my big rainbow umbrella to keep sun off me. I also know that one round about Wal-mart in their scooter wipes me out. I am going to have more enthusiasm than stamina. I have never been good at moderation. Sigh…..