The biggest reason I went to the ER was vaginal bleeding. This was the third time this happened after air bubbles, presumably from colon to vagina and colon to bladder fistulas opened up. Perhaps all three of those structures are connected by sinus tracts. A week ago all sorts of bad things were going on 😕 Then the barium made things worse. I probably had small amounts of peritonitis when my fever went up to 102.
“They” know this is happening to me. In a stronger, younger person, a surgeon would go in and resection the bowel. The connections to organs would be removed and that might fix everything or it might only be a temporary fix until things grow together again. For me, the fistulas and sinus tracts have been multiplying quickly. Every CT scan is worse than the one before.
There are many reasons I am a poor candidate for abdominal surgery. The biggest is that I have still not healed from the last two surgeries 19 months ago. They had to cut away my fascia and other tissue to get rid of extensive infection. Since I have connective tissue disease, that impedes healing, I take “forever” to heal. Then the darn infections raise my blood sugar. The higher my blood sugar, the slower I heal. Then, thanks to WNV, the operations and my higher carb diet, I am fatter. Add to that myasthenia gravis and I am at very, very high risk for more surgery.
But… I can’t continue to live with my guts all connected together. As I was told earlier this year, I am between a rock and a hard place. I have a high chance of dying from surgery and a high chance of dying without it.
I am REALLY pissed off with this last ER doc. I repeatedly told her I had a complete hysterectomy last year and shouldn’t be bleeding. She did a female exam on me, using this really cool lighted speculum. She was hurting me! Finally she said she couldn’t find my cervix. Ummm…duh! I had a complete hysterectomy.
She then disgustedly told me I had a yeast infection and there was no bleeding. If only I had kicked the crap out of her at that point! She then dismissed me and sent me home.
Well, the test results came back. She was wrong. It says PMN’S Present. Clue Cells, Yeast (budding and/or hyphae)
and Trichomonas are not present
The PMN’s are the first line of defense against infection. The bad stuff being introduced by the connections between my intestines and organs was being attacked by these cells to rid me of infection.
I feel sooooooooo sick 😕 The ER doc was supposed to prescribe antibiotics to tide me over until the surgeon or somebody comes up with a better idea. She didn’t.
Whatever is going on inside me hurts more than it ever has. I am still barfing up lots of bubbles. My belly is hugely distended. I am sorry I ate the eggs today. I wasn’t very hungry for them to begin with. I haven’t eaten since.
My MG is getting worse and worse. I am also dizzier. Lord only knows what’s going on with my eyes! I noticed it, but didn’t say a word. When my neighbor was here yesterday she said my eyes were different sizes and then came up close and confirmed both my pupil and iris are much smaller on the left side than the right. Interesting she noticed! I have been having strange sensations in my head.
I guess I slept 3 or 4 hours when I said I needed a nap. I sincerely wish I could have slept a lot longer. I feel like I am disintegrating. Soooooo much pain…
At least it’s getting closer to Monday and a couple of doc appointments.