Today was the last day that the Great Clips coupon was good. I decided to go to FNB, then get my hair cut. FNB was a bust. I got 2 jalapeno peppers, 2 cups yogurt, 2 onions and 2 bananas. I was at the end of the line and there were LOTS of people. Hardly worth my dollar and the long wait in line. The onions are pretty rotten.

The first thing I was asked as I slipped through the door was if I had signed into Great Clips and had an appointment. I was the only one in there getting a haircut! I feel a zillion times better without hair in my eyes. Haircut and tip $12 ๐Ÿ™‚

Then I went to Trader Joe’s. 22 items for $80.78. Way to blow most of my food dollars in one place! That was 2 reusable bags worth. And for once….I didn’t break any eggs on the way home ๐Ÿ™‚ WARNING!!!! Don’t buy TJ’s chocolate cocoa truffles!!!!! They are soooooooo addicting! I never had one before. I was feeling decadent and spent $2.99 on a box. I had to hide them from myself after trying some.

I felt yucky before I left and now I feel awful. Nowadays I keep going by thinking about IVIg. I like having hope ๐Ÿ™‚ It had been three weeks since I went shopping on my own. I had to go. I ate the last eggs for breakfast.

My hand arthritis hurts BAD! Each joint is painful and some of my fingers are swollen. The pain is the sort that makes me feel like barfing. It is very typical of MCTD. My middle fingers are the worst. I want my plaquenil back!!!!

Now it’s evening. Despite taking my Mestinon at regular intervals, I am weaker than I have been in a long time. I can just barely get to my feet from sitting. I pared and cut up an apple. You would think it was an Olympic sport! Totally SOB. I could only breathe by bending over. Wicked bad weak so that much of what I reach for or actually pick up gets knocked or falls to the floor. Intense double vision that is also blurry. Swallowing is painful and causes choking. Somehow going to FNB, getting a haircut and going to Trader Joe’s set me way, way back. It always amazes me that being in a power wheelchair can be so exhausting. It wasn’t a very long trip in blocks or time. I took TRAX partway home. Geeze! I remember why I don’t go anywhere for days on end and just sit here like a lump. I have almost no reserve of energy with my MG being like this.

I wish I could go to the new doc’s ER and throw myself at their mercy. It seems each night is worse than the one before. Throat pain plus weakness and breathing difficulties keeps waking me up. And the headache from hell shows up each day. It is soooooooo scary during those moments when my diaphragm gets paralyzed and I can’t get a breath. My ribs feel like they have been beat up.

I suspect it’s another infection. Still having chills, then fever. My belly feels more broken than my voice. Sigh…. ย Relly, it feels like someone has come along and kicked the crap out of my ribs. I wish I din’t have to breathe! I wish oxygen was easier to get. Great, now the struggling to breathe has my neck veins on fire and popping out.

I am very tired, but sure don’t look forward to going to bed and enduring another night of torture.