I started out the morning with the ability to talk well…..then I violently choked on my own saliva until I didn’t have a voice at all. I had just taken a pic of myself because I felt the ol’ MG weakness rolling over me. Yup, I guess! The choking made me so weak that my muscles are still quivering an hour later.
After resting, I thought I could talk well enough to call my insurance company. Oh. My. Gosh! Soooooooo frustrating! Each number turns into several syllables. The guy wasn’t very good at deciphering. And the more I had to repeat, the weaker I got and the less he could understand me. My phone says we did that for more than 25 minutes. He was nice and at the end asked if he could do anything else for me. I said “Could you make me all better?” He got so flustered that it was both funny and embarrassing. Well, when you are dealing with an insurance company…..sounds like a good request to me!
So, around noon, I headed out. Just as I got near the TRAX stop, my train came and went. With 15 minutes until the next one. I decided to go up to the next stop for fun and excitement. People in that part of downtown are very rude 😮 I was glad to get off the sidewalks and wait on the platform.
I slowly headed towards the law office and bumped into a woman I had seen before. She was eating her lunch on a patch of grass off the sidewalk. She lived my wheelchair nightmare 😦 She was hit by a car while crossing State Street. She was born with cerebral palsy, so she sure didn’t need being hit! The car broke her leg and did other unpleasant things.
Soon it was time for me to go in for my appointment. I met with my usual woman lawyer and the new guy who had only worked there for a week. We sat at a big table in a room full of law books, with a UFO looking device for conference calls. The people opposing my IVIg infusions were numerous, plus there was the administrative law judge and at least one other person with her. The lawyer says the shear number of people against me is for intimidation. They need shear numbers to make up for their outright lies, misinformation and bullying tactics. I like to think the judge saw through them.
The funniest and best part was when the bullies told the judge that I never followed up with my neurologist since the February hospitalization, that I only got better from IVIg because I have conversion disorder, that no doctor has ever said I have MG, etc. The judge talked to me and I told her I had been waiting almost 2 months for 2 docs to work out who was going to see me. I explained that my doc had asked for a SFEMG and the neurology department has been avoiding scheduling the test. The judge wasn’t amused 🙂 All the bullies claimed they knew nothing about it, but would make sure the appointment was authorized.
Golly, gee! By the time I got home, there was a voicemail saying to call back and make a choice. Suddenly the doc that my neuro wanted me to see doesn’t do that test….and I have a choice between one of the bullies or a doc I never heard of. I chose the mystery man and my appointment is for mid-July. I was told the specialist neuro that my neuro wants me to see about the other neurological problems, is not an option and the referral is only for testing, not consulting. What? Pretty funny how things changed so fast after the phone conference :-p
I sent off a quick email to my lawyer who was equally surprised. I also left a message for my current neuro and asked what HE wants. I am so psyched that the bullies pulled conversion disorder out of their @$$. It’s the exact same thing they have told the other women who have come forward. That’s a nail in the bully’s coffin 🙂 Must be there’s an epidemic of conversion disorder in women who believe they have MG in Utah. Must be they forgot their ER doc told me I had Munchausen’s. They need to coordinate their stories better 🙂 Snicker….
Thank God I took it upon myself to go to get evaluated at the mental health place!!!! Those folks are beyond disgusted with the bullies. My lawyers think it’s all a game and a farce, too. So…..that was exciting, huh? This should be a long, strange trip!
Here’s a video with Olive. She’s such a……cat!