Back in the mid 2000’s, generic pyridostigmine came on the market. A bunch of us called in to our neuro, who mostly had MG patients. He figured out the sudden flood of people not doing well was related to generic versus brand-name. He gave us the Mestinon brand name, and we all got stronger again.
For awhile he had to keep filling out paperwork so that my insurance would be willing to pay for brand name. At some point, I got tired of the game and switched to Mestinon Timespan. There was no generic substitute. But beginning the last week of June, a generic extended release pyridostigmine was on the market. I got my prescription yesterday. I took my first generic pill last night. I woke up feeling like I had been run over by a stampeding herd of buffalo. And so far, after 3 more doses, I don’t feel any better. I am way dizzier than usual….even for me. The question is……was this going to be a particularly weak and droopy day, anyway? Or are the generics not working as well as the brand name meds? That’s a tough one to figure out with me. Sigh…..
And today I got some mystery boxes in the mail, with mystery food in it. I am most probably going to offend whoever sent them, but please…..don’t anybody send me random stuff unless it’s something I have specifically said I need or want. I feel like such a bitch saying that 😦 But that’s the truth. It makes me heartsick to see money wasted.
The boxes have Amazon written all over them, but Amazon claims they did NOT come from them. The return address is an Amazon center. I contacted Amazon about returning the food and they say food cannot be sent back. Under these circumstances, I don’t know where that food has been or what’s in it. I am not comfortable consuming it. I feel bad that someone went to the expense to buy and send it! I am very, very grateful to the person(s) who sent me presents. You must care a lot about me. Thank you 🙂
I spent an hour Googling how to act gracious, how to be grateful, how to act when you are given something. There was a step-by-step page of how to act surprised and say oooohhhh and wow….even if you don’t want the gift. How to React to a Gift You Do Not Like In oh, so many ways I feel like I am back to childhood. I will never forget when a pseudo relative gave me a set of make-up and jewelry cases….when I despise makeup and jewelry. Part of me was touched that she cared enough to give a gift. The rest of me was mystified. Did she even know who I was?
How come it seems like everybody in the world knows how to act but me? Lying seems more painful than pretending. I have always had to research how to act and what to do in social situations. It seems to come easily to the average person. How do you do it?
While I was worrying about offending the kind, mystery giver, this popped up from Heather’s friend. Love it! Warning! The music is addicting and gets stuck in your head. I was worried about the black llama at the end, so I watched another, slower version and saw it get roped. Whew! They sure are good at dodging and weaving. I need to take lessons!
Almost all I remember from today is being woozy from the new version of my meds. I tracked down a couple of people who also don’t like the new generic….but there was one woman who said she got used to it. I guess time will tell!
I have been sitting here in the dark, enjoying my little “campfires” 🙂