I took Paratransit to the doc’s office. The receptionist said I was his first patient of the day. As usual, I messed up the rest of his day. My appointment was for 20 minutes and I was in the examination room for an hour and a half. Sorry 😦
I came prepared. Instead of talking, I first showed him pictures of all the things wrong with me. He was shaken. Then I stood up, pulled up my shirt, down my skirt and freed the hernia to he could see it up close, personal and HUMONGOUS. Next I showed him the pic of the bleeding hernia rip. Then I went down my written list of concerns. At one point, the guy hung his head and sobbed 😮 I seem to have that affect on docs.
Even though there’s not much that can be done for me, it’s nice to know he cares. I got my first ever shingles shot. I am being sent to an ENT. He prescribed more mupiricin ointment. I asked the doc to spread out his fingers and show me his hands. I showed him mine and asked why my thumbs are disappearing under my palm. He said I have severe osteoarthritis. I told him the arthritis sometimes makes me cry. He winced.
Reason for Visit:
Swelling, Lower Extremity
Ulcer of abdomen wall
Osteoarthritis Of Right/left Hand,
Need for shingles vaccine
Myasthenia gravis 08/15/2012
Degenerative arthritis of knee 08/15/2012
Stasis edema 08/15/2012
Abdominal pain 08/15/2012
Scarring of skin 11/02/2012
Diabetic nerve disorder 04/18/2013
Chronic airway obstruction 04/18/2013
Sleep apnea 04/18/2013
Low back pain 04/25/2013
Abnormal walking 04/25/2013
Chronic pain syndrome 04/25/2013
Muscle inflammation 04/25/2013
Arthralgia of multiple sites, bilateral 05/20/2013
Long term use of blood thinners 07/22/2013
Acid reflux disease 07/28/2013
Intrinsic asthma 07/28/2013
Chronic abdominal wound infection, sequela 10/28/2013
Immune deficiency disorder 02/06/2014
Recurrent infections 02/06/2014
Non-productive cough 05/10/2014
Diverticulitis of large intestine 06/08/2014
Abnormal opening between bladder and intestine 06/08/2014
Asthma flare 07/20/2014
Diverticulosis of colon 12/12/2014
Voice disturbance 02/19/2015
Butterfly rash 03/06/2015
Iron deficiency anemia due to chronic blood loss 12/09/2015
I complained about stupid things being on my chart. Like right when Rhett got diagnosed as bipolar, the diagnosis was added to my records. It was bad enough to have fetal malnutrition on my record, I sure didn’t want bipolar! I have enough of my own problems without adding extras. I was pleasantly surprised to discover they took it off my record 🙂
One weird thing is that the MCTD (mixed connective tissue disease) was changed to chronic pain syndrome and muscle inflammation. When I clicked on muscle inflammation, it went to myopathy. Polymyositis is part of MCTD and all those things give me chronic pain, is that close enough? A few people told me when the codes changed, so did some of my diagnoses. Who knows? Who cares? Nothing matters in Utah.
After more than an hour with the doc, he sent in a new RN caseworker. She was way too nice and empathetic for her own good. She is also fairly new to the whole insurance/doc/hospital conglomeration. She was shocked and disturbed by how I have been treated within the system. She wanted to hear all about the whole Munchausen/panic attack/conversion disorder experience in the ER, my ongoing mental health visits with professionals who deny I have any of those problems, the refusal of insurance to pay for IVIg, the judge’s IVIg decision, etc. She kept asking if I had records from my old neuros and just could not stop being incredulous about the whole denial of my MG diagnosis thing. She asked if I had considered switching insurance companies and finding a new neuro 🙂 At that point I realized it was time to get back on Paratransit, so I hurried out. The RN said she had never been involved in such a difficult case, said she would work on it and wished me well. She looked almost as troubled as me about the whole mess.
My first half a dozen sentences at the doc’s office were “normal”. Soon, my voice got worse and worse and worse. It was great to be out in the cold after the appointment. My voice got stronger. By the time I got home, I was very surprised that my voice worked great 🙂 But OMG!!! The air pollution was awful outside. The mountains were hard to see.
I got home and remembered it was food box day. The paper thin guy was happy that I will be getting Meals on Wheels. Another one of my favorite old guys gave me his 6 Activia bottles 🙂 We got better food than usual lately. I got 4 cans of tuna, 2 small cans of salmon, 3 cans of cranberry juice concentrate, peanut butter, 2 cans fruit cocktail, a box of honey graham crackers, a loaf of oat bread and 6 of my own strawberry Activia bottles. I left for someone else, 2 cans of beef stew, a jug of grape juice and a brick of plastic cheese.
It’s 1:30 PM and I haven’t eaten anything yet today. Time to scrounge around for something good 🙂