I had to go shopping. I only had a few generic Benadryl pills left. Dang! 100 didn’t last long. I thought they were cheap at 100 for $3.79 at Smith’s. At Costco they were 600 pills for $4.49. Good deal 🙂 I also got another monster bag of mixed frozen berries. I finished off the last batch on Thursday.
My trip almost ended before it started. Once I decided to go somewhere for meds, I got up to get ready. My legs kept giving out underneath me. I could barely pick up my feet or my arms. I was super dizzy and the darn quivery buzzing has been going on more than 24 hours non-stop! I wish I could think of the right words to describe being SOB. Not an elephant on my chest. More like air doesn’t have oxygen in it. I am physically breathing and it feels like I am way short of oxygen. I kept imagining my old Food Saver vacuum sealer. It’s as if I’m in a plastic bag as the air gets sucked out of it. There’s pressure on my chest and not enough to breathe.
The whole way to TRAX, I kept wondering if I should turn around and go home. I decided to go to the closest Costco, even though that means more wheeling in my chair. I left around 9 AM, while the air was still cool. I got off at 1300, near where the Bees baseball stadium is. Wow. $27 for the expensive tickets, with cheap ones for $11. I wouldn’t go to a sports event for free….or even if someone paid me!
My uncle took me to the Syracuse Chiefs baseball games a bunch of times when I was a kid. I was not very excited about baseball. I just wanted to go places with my uncle. For the heck of it, I looked up their ticket prices now. At the gate they are $8 to $13. Better deal in Syracuse!
It’s a PITA to get to the Costco near me. I get off TRAX at either 1300 or 2100, go a block west then 4 blocks towards 1700. Then 3 blocks east to the Costco access road near the interstate. Then it’s a long trek in a chair to the entrance to the store. The whole trip there I was not fully present. As soon as I went into the walk-in refrigerated sections, I felt a zillion times better. The coldness made my MG better. It’s very cold where they keep the cheese. I lingered 🙂
The SLC Costco has more stuff than the Murray Costco. I should have spent more time cruising the aisles to compare, but I was pretty weak and out of it. Again, I got to the TRAX station in time for the blue line. I went up the very long ramp to get on. The new driver forgot me when we got to Courthouse. Luckily the guys training him made him let me out 🙂 I was roasted and toasted by the time I got home at noon and the temperature had gone up to 90.
Oooooohhhhhh….that cold shower felt good! I did that before putting away the berries. Before I left home, I had put on that zinc based sunscreen because it was a UV alert day. I made it back home before the worst of the UV. Dang! My skin is still white from the zinc….but this time no pockets of lotion are under my skin 🙂
When I am having a stupor sort of day, the time flies and it’s really hard to remember most of what I did or thought. Mostly I kept fighting to stay alive, upright and breathing. I got in bed with CPAP and oxygen for a while, but the buzzing/quivering/vibrating/zapping thing is too intense to snooze through. At least I gave my lungs a rest for an hour. My heart has been quivering. Feels creepy. But the worst are my feet. Restless legs have come back in full force. The best way to describe it is prickly, tickly and zinging zaps.
Oh….on my MCTD group, a woman posted her feet and hands. She wanted to know what was wrong with her. Pretty soon a bunch of us had posted almost identical pics. I’m sorry other people have the pain, but it makes me feel a lot better to know it’s not just me!
MCTD gives us sausage digits that are often red from fingertip to the first knuckle or toe tip to the first joint…or the whole toe. We all had the same sort of bends in our fingers and toes. Very interesting!
FINALLY…the elusive nurse who teaches how to use the insulin pump sent me an email. She has had more than a month to schedule an appointment. Of course she wanted to see me next week when I already have 4 appointments. She agreed to come to my place on the 12th, instead. Yes! I have a diabetes educator, a nurse to teach pumping, a dietician/nutritionist and an endocrinologist. Also, I keep getting automated calls from the Utah company that is supposed to deliver my insulin pump supplies. It tells me it’s time to reorder. Hah! I have ordered none of the supplies YET! I have no idea what they are. Some sort of insulin for the pump, tubing, different strips, glucagon and who knows what else? All of this is very confusing for my old and addled brain.
I did not feel like I had low blood sugar this morning. I was very surprised to see it was 63. I felt nothing like the time I was 61 and could barely function. There is such a thing as being hypo-unaware. I hope I don’t get like that. So….after I took my meds and ate 3 prunes, the next time I took my blood sugar, it was 338 😮 That’s what happens on a bad gastroparesis day. The steroids and gastro get together and my blood sugar zooms up. This whole thing is sooooooooo frustrating!