My short-term memory is scary. Sometimes it only lasts for seconds. I have had to come up with ways to get from point A to point B, while still remembering. Almost every time I go from my apartment to the building’s front door, I have no idea why I am there or where I am going. It takes hanging out, talking to people and lots of trying to think before something clicks in my brain.
Stuff from the past is much easier to dredge up. I guess that’s why old folks like me talk about the past so much….at least we still remember it! Usually it takes some trigger to get me back to another time. This morning I was watching the CBS news and Norah Jones was on. They said in 2002, her first album came out. I remember! Peter, Heather and I were in Boston….or at least Heather and I were. We stayed at a hotel and I had doctor appointments.
As soon as I heard Norah Jones, I paid attention….which in itself, is unusual for me. I loved the music! I went right to a big music store and bought her CD. That was very, very unusual for me. I remember more about Norah Jones than I remember about the docs I saw 🙂 I was sent to Boston at least 3 times when I lived in Vermont. All my life I have been “complicated”. I never have just one thing wrong, and it’s never something “normal”.
Did I really say I was OK with this in the pre-existence? Was I crazy? Must be I needed to develop my character and endurance. I hope there are perks later! Hopefully by living through all this, I have advanced through some important learning stages. I guess I had a lot to learn! And thank goodness there is eternity to keep learning. I’m going to need it.
Yesterday, the next stage of existence seemed much closer. There were several times that death seemed more imminent than ever. I figured out why breathing is so much harder than just MG or asthma or air pollution. My hernia is more than an annoyance to breathing. It is now a hindrance. If I can somehow prop up the hernia, I can breathe much easier. I was horrified to discover how much harder it is to breathe in bed as well as when sitting. Because the hernia has become so round, it doesn’t stay where it’s put. It’s a lot bigger than when Heather was here. I wish I could take a picture. It takes all of my strength and both hands to lift the hernia up. It is much more in its own sack than when it looked like a snail foot. Now it’s like a huge beach ball that’s not as attached to the rest of me. Yup…hurts 😦
Another thing that seems to be progressing exponentially are skin issues. There are hundreds of new skin tags. And all over my entire body are those stucco keratosis things. They get to a point where they hurt/itch. I spend hours of each day scraping the flaky, waxy white lumps off my skin. Yuck. There must be some sort of relationship to crummy health that makes skin things proliferate.
The all inclusive body edema gets worse and worse. Even the bottoms of my feet are full of fluid. It’s like walking on a squishy rocking chair rocker. My ears are full of fluid, as is my scalp….and everything between my scalp and soles of my feet are swollen. This is crazy 😦
I cannot stand up for more than a couple of minutes. Very soon, my back aches something fierce and the tug of gravity on the hernia cuts off my ability to breathe. As far as I know, these are obstacles that cannot be overcome. I am more convinced than ever that a pacemaker won’t/can’t help me at all.
Breathing got so difficult that I gave up and crawled in bed with CPAP and oxygen. I slept 3 hours and woke up confused. With a heart monitor and an insulin pump attached to me, I have to locate them, put clothes on and somehow fix them to me with clips or in pockets. Without my brain working well, it’s crazy how difficult it is each time I change clothes or get up from my living room chair or go somewhere in my power chair. The wires and tubing get all caught up in each other. The slightest tug and either my electrode patches unstick or the wires unsnap. The meter alarms and I have to figure out what the problem is and then fix it. I already have sores all over from the “sensitive skin” and regular stickies. Sigh…
Then there’s the insulin pump. I am still trying to figure out why my blood sugar is so crazy high, Yesterday afternoon I was 241. Today I had a salad for brunch made of greens, avocado, pico de gallo, chicken meatballs, ranch dressing, Mexican cheese and chow mein noodles. I figured it was about 50 carbs, but punched in 100. I hoped I would not go too low. When I woke up, I was 209! At first I thought maybe insulin was leaking from my site. I looked closer and there’s blood under the adhesive. I only have enough supplies to change the site every 3 or 4 days. But when I changed the site after highs last time, that wasn’t it. Could it be more than stress? My messed up sinuses? Infection from the hernia ripping? The huge amount of edema? All those? Something I haven’t heard of?
I also feel anxious about my broken phone. The company has not written back. Perhaps it’s time to go find another lifeline company and start over? I hate the thought of updating my phone number all over the place. I still have that $5 phone just in case. I would have to pay for service, so am trying to hold out. I figure I could always email someone with a phone if I need emergency help. Too bad it’s so complicated to text from a laptop. I would have to know the carrier of the receiving person. There is text to 911 in this area. You would think in this techno age that there would be more options for talking to cops and ambulances.
A long time ago, I paid for a phone # that could be used on the internet. What a PITA! I hate telephones. I hate talking if it’s not in person. My hearing is as scrambled as my voice is broken. I forgot who I was talking to last week. I had to ask them to speak slowly and clearly. I still could not understand. All I heard was wha wah wah wah wah. I get sooooooo frustrated trying to live in a very confusing world! Thank goodness for email and blogs. I can do those more often than I can talk.
I am still frustrated with my camera to chromebook transfer. The first time I put the new SD card in my Lumix camera, it formatted the card and automatically downloaded the pictures. Ever since, the pics cannot be erased from the SD card and the chromebook no longer discerns between new photos and all the photos on the card. It’s getting to be a major PITA now. I have gone to forums for both chromebooks and Lumix. I am sooooo confused. My other chromebook had an SD card slot. This one doesn’t. When I put the SD card into my other chromebook, a prompt would come up saying I needed to eject the device. Even with the card almost full, each time it would only show me the new images. When I connect this camera with a USB cord, it never shows an eject symbol. I’m too old and confused. Sigh……I wonder if there are solutions to my problems?
Are you getting the idea that just about everything is annoying me right now? I’m probably extra grouchy from my physical and mental defects plus all the not-helping from organizations I need help from. It does not make things better that I never left my apartment today…because I felt so yucky.
The photos in this blog post are from random places and different days
Lately when I write, everything I want to say hides in my brain. I woke up today thinking about the presents I got on Saturday. A mystery person sent me a case of Kleenexes and a pillow case for my wedge pillow. Thank you! 🙂
There was a knock on my door and when I opened it, a big box was in the hallway. I tried dragging it in and hurt my big toe and then I came close to fainting. I really lucked out when the missionary came along to gather my dirty laundry. She offered to help. She put the Kleenex boxes on a shelf in my bathroom closet and then she broke down the big boxes and recycled them.
This morning I woke up around 4:30. I tried to go back to sleep, but I felt too icky. My hernia feels like someone kicked it all night long. It way more swollen than usual…as is the rest of me. My internist was worried about my pitting edema on Friday. Now it’s my turn to worry. Even my arms are painfully swollen. It seems to be one of my body’s new strategies. I think I am less dizzy when this swollen…..but oh, my gosh….I feel sooooooo queasy! And my first blood sugar test of the morning was 125! 😮 Usually it’s 80’s or 90’s. I think part of the problem is that I had so many visitors yesterday that I procrastinated changing my insulin pump set. After a few days, each site stops absorbing insulin very well.
Then just now, my heart monitor alarmed. It said the battery was low and needed recharging. Ooops! I forgot to plug it in yesterday. Makes me wonder how many bazillion other important things I am forgetting.
While watching the news, I figured out why I woke up when I did. There’s an apartment building on fire 7 blocks from my house. To Heather…it’s on the other side of the same block as the Tulie Bakery. Yikes! A local tweet says “According to SLC Fire: 30 units impacted by fire in SLC. At least 40 people displaced.” There are still fire and ambulance sirens and the air is quite smoky. Geeze….the smoke is really obnoxious at my place…must be horrendous for people living closer. ‘I was totally trapped,’ SLC firefighters rescue residents from massive fire
An apartment fire is a nightmare. Remember when I talked about the guy in my building who pulled down a sprinkler head and flooded parts of this building? It was months ago. People for 2 floors underneath there are still suffering from lots and lots of mold, falling sheetrock….and wrecked electrical connections. Gordon said his light switch was sparking. Management was informed….and for them it was a big ho hum. They did nothing 😮 I hope they send in electricians today. Utah has very few safety regulations….the way Republicans like it. I am appalled at how often apartment fires are in the news…along with pedestrians being killed by TRAX trains bikes, motorcycles & cars. There are numerous bank robberies and officer involved shootings. It’s still the wild west.
Well…this morning was my first chance to take all 4 electrodes off my chest and the insulin connection out of my belly. I had to do some serious scrubbing to get all the stickiness off. Quite a production to undo all the leads then put them back in the right places and correct order. It looks so simple from this diagram. Bwahhh ha ha ha ha ha. Then there was the fun of finding a suitable belly spot for insulin tubing. Between boobs, hernia and my port, it’s a challenge to find suitable real estate. I still had not eaten anything and my blood sugar was up to 145. What the heck??? There are some days it never gets that high even after eating. I’m curious what is wrong with me today. I’m feeling yuckier and yuckier.
I made a nice basket of goodies for Helen. I have no idea what sorts of things she eats, but I put pumpkin tarts, quadruple almond cookies and almond kringle slices in a basket and wrapped it in plastic wrap. Once my guts feel calmer, I will get dressed and go visit her. That’s another challenge….getting dressed. It was complicated enough with the insulin pump. I am mostly used to the weight of that hanging off me, now. It’s harder to carry the heart monitor because it pulls down my shirt or skirt. First world problems, I guess.
I have repeatedly looked at my online medical records since I saw my internist. Each time they have been different. The nurse notes infuriate me. She made more mistakes than things she got right. I have very little faith in assembly line healthcare with the cheapest help they can hire. Grrrrrrr……..
I visited Helen who is many shades of purple. It hurts to look at her beat up face 😦 I hope she heals quickly. After yakking with her, I took off to turn in my ballot at the county government center. I decided to go straight down State Street, from my place to 2100. That’s 2 miles. I have never done that before. State Street up close and personal is even more creepy and seedy than I thought! I took my ballot inside and put it in a special box. They gave me an I Voted sticker 🙂
On the way in, I had seen a woman raking leaves from her power chair. When I came out, I went and talked to her. She was interesting! Then I talked to her friend who came along in a power chair. We had soooooo much in common!!! We were all LDS and had endured more than our fair share of health challenges. What a treat to bump into those women 🙂
Then I went down 2100 until I got to TRAX and took it to Library and wheeled it home. While talking to those women, then while talking to people in my building, my heart monitor was spazzing out. It was quiet and doing OK for maybe an hour and began flashing all sorts of screens. I called the company. I had to take it all apart and put it back together, put on new electrodes, push buttons, etc. It worked less than half an hour. I called again. The guy determined it was broken. They are shipping new parts. Figures, I was good and woozy dizzy today.
I had a lot of visitors today. The Utah Food Bank, the pharmacy, my reformed window stalker and the Relief Society president. I also talked to quite a few people outside and in the common rooms. Busy day! I hope all that excitement is the reason why I am so, so sore.
I have to admit…I am relieved I don’t have to wear the heart monitor tonight. It was stressing me out. I need to find a better way to carry both the insulin pump and heart monitor in the future.
At 2:30 AM, I. caught 2 males in the parking lot. They were wearing dark clothes, each had flashlights and one was carrying a large sack. I heard them trying to open car doors, I got up, scared them and locked my windows. They ran to the road, got on bikes and zoomed off. Gulp! I got in bed and slept seven more hours.
All night in my sleep, my hernia hurt. Today it is substantially bigger 😩 My pupils are still unequal. Makes seeing difficult. Makes me queasy. The darn fluctuating fever keeps me hot and sweaty or cold. I can only presume it’s an infection because my blood sugars are up for no other good reason.
I alternately watched TV, listened to the radio and played solitaire. In the late afternoon, I went out to take pics on my block. This is what I looked like dressed. People sitting around outside made sure to tell me I looked awful 😕
This is me in my relaxing house clothes. Darn MG, darn steroid face, darn fever. Sigh…
That tree always looks pretty 😀
I don’t know how to control the pic placement or size on the Kindle Fire. Old dog…new tricks and all that.
It’s both startling and amusing to be woken up at 5 AM by a chiming, vibrating insulin pump on my sleeping chest. While still mostly asleep, I got up, pulled the old tubing set and took a shower. I should have rested longer after the shower! I was tremoring so bad that I wrecked the new set’s needle. Sigh…then I forced myself to be calm and rest. The next try was successful. I got insulin flowing again.
I have not eaten eggs or onions at home in months. This was the first morning that I thought of my egg and veggie scrambles nostalgically. Lately I have switched to premade flan as my go-to easily digestible breakfast.It’s a fairly small amount of egg and milk, with just a touch of sweetness. I am still surprised I feel hunger again after that 2 week course of Xifaxan. I am extremely grateful to have most of the agonizing gut pain gone. A bit less thrilled about my new voracious appetite!
Now the problem is back to mechanics. With the hernia so much bigger, digested food is not moving along…despite the 3 stool softeners, 2 doses of Miralax and 5 prunes daily. I was warned this would happen. Not really looking forward to taking harsher meds for that, but that is what’s next. I consider it a miracle my intestines work at all!
I kept thinking my wheelchair seatbelt was just tangled. No such luck. In the last week, I need about 4 inches more of belt 😨 I am also waddling even more when using my walker. It’s making my lower back super owie…like someone 11 months pregnant 😮 The hernia is enlarging quickly. I don’t really need to say it, but…..this sucks. It’s very much affecting my breathing. There’s nothing that can be done about the internal bleeding or any of that. I am trying to be brave.
I sure am glad I got to see Heather and the grandkids before I got any worse. The adrenaline kept me going. I would feel icky, but when they got here most mornings, I went into overdrive and seemed relatively OK. Today I never even got dressed. Sooooooo tired!
Yup…I miss my laptop. I was trying to convince myself that it would be wasteful to get a new one, but am grateful that Heather ordered me one 😀 My vision is awfully blury to be using the Fire very much.It’s also tough to hold onto and isn’t doing my bent over neck any favors. It is like using dial up internet… glacially slow to open web pages. Thank goodness I have it, despite the shortcomings! I go crazy with no connection to the world.
I haven’t had any human interaction today. So….I’m waving from SLC!
Yesterday my vision was fuzzy. Today it’s double, blurry and very wrong. I cannot focus very well. I see mostly blur, but tried to look at my eyes in the mirror. Sure looked like the right side pupil was much bigger than the left.
I went to the community room to donate the kid’s leftover yogurt. I happened to bump into the nurse who lives here. She stopped me to say I “look like hell”. She wanted to know why. She looked close and noticed my pupils. She was alarmed and said I needed to go to the ER.
Good thing I know where letters are on the keyboard! Using the Kindle Fire means it’s even harder to see. I can find my Google pics online, but I cannot figure out how to get them on this blog. That will teach me for being too tired! Actually I could not focus my eyes last night and blamed it on fatigue. Unfortunately it seems to be more. Sigh…..
I was messing around with a pic on this device and made it into a drawing.
That’s all you get today 😮
The TV remote quit working tonight, even with new batteries.
I got so dizzy I went to bed…but then I dropped the Chromebook and broke it. It’s a gonner 😦
I keep getting to the point of fainting. Even when I bend my head way down, my head won’t work….as in seeing, hearing, thinking clearly, etc. Sigh….
I hope I can still access my photos on other devices.
I tried to sleep, but I was burning up and was soaked in sweat. So I’m back in my chair.
It really sucks for both me and technology to be broken 😦
At least I have a Kindle Fire. It’s hard to see and I don’t know how to do much on it, though. Ten thousand sighs…….
Whew! I made it there and home. The doc’s practice is called the Gut Whisperer. He definitely deserves the title. He’s one of the most interesting docs I have ever seen. He has at least half a dozen MG patients, which by itself is noteworthy. Before seeing him I had to fill out at least a dozen pieces of paper. He read out loud when he got to the part about all my diseases and operations.
We bantered back and forth about stuff and he stopped, looked deep into my eyes and said I was a remarkable person. He said there wasn’t a trace of oh, poor me or bitterness in my personality. I didn’t know whether to blush, thank him or argue 😛 He laid it on thick. Then he described some of his sad and mad patients. I told him after watching my father’s anger, I did not want to grow up to be perpetually pissed off. I have my moments, but it’s more like a quick storm. It was weird that he made that the centerpiece of our visit. Maybe he likes to add positive reinforcement to make people’s guts heal.
He then rattled off exactly how I feel and what happens to my guts. That was amazing! I figure he has been a doc for a while and understands gut distress. Cool 🙂 Then he said the first thing he wants to do is give me an expensive medicine. I’m supposed to take it for 2 weeks and see him in 4 weeks. I looked it up. The dose he prescribed costs $1713! Wow! It’s called XIFAXAN (rifaximin). My next favorite thing about the guy was his face when he found out insurance will not pay for maintenance IVIgs. He was disgusted and said they were stupid 🙂 Other than that, he was all sweetness and light.
I am still all shaky and tremoring from last night. I thought I was getting better, but it just keeps happening. My blood sugar is 130, which is acceptable. Must be my body is skittish after last night. My brain sure is! That was one of the scariest things that has ever happened to me. I was aware of what was happening and felt little power over my blood sugar plummeting. I wasn’t so sure I was going to be able to make and eat a pb&j sandwich. It was hard to think and hard to do anything. I can for sure see why insulin dependent diabetics keep glucagon and other things close at hand to deal with sudden, unexpected lows. I’m thinking maybe I should get some shelf-stable boxed chocolate milk.
I have a couple more appointments today, but wanted to post this for now. As long as nothing else weird happens, I will write more later. I have pics!
I like being a loner and a hermit. Somehow I have to make that work as my brain cells get fewer and farther between. I am perpetually dazed and confused. On my best days, I pretend that I am fine. On my worst days, I forget how to pretend.
I suck at asking for help. It embarasses me to ask for anything whatsoever. It feels like a failure on my part to need that which I cannot get for myself one way or another. I watch other people being helped in all sorts of ways and wonder how they managed that. Some people just exude helplessness. Generally they get lots of offers of help. Other people both ask and demand things. Depending on how well they can manipulate others, they seem to often get what they want. I am not sure how a well balanced person asks for help. They make it seem effortless.
I am rarely mistaken for well balanced. I have this overdeveloped sense of black and white, right and wrong. I go through all sorts of contortions to follow what I believe is the right path. Some people don’t…they just go for what they want and need. My usual example here is a woman who has never paid her own rent. First it was because of escaping abuse, then physical problems, then surgery, etc. She owned the newest, fanciest car in the parking lot, which others pay for. After she had been unemployed for months, she got a job and immediately went on a cruise…and got fired from the job. All through this she got tons of free food and rent. She has had the same job for a few months now. I was stunned to see she is driving a brand new sports car. She is often bringing in bags of food from restaurants. She has pretty, new clothes. I feel like such a chump.
Right near the front door of this building is a clump of gorgeous purple iris with variegated leaves. They are at their peak right now. I was sitting in the shade of a nearby tree when the entitled woman came outside in her pink jammies (lease violation). She told me she wanted to pick some iris. At that very moment, the RA came through the door. This woman did not ask to cut the flowers, she gave the RA all the reasons why she should be allowed to…they were going to die anyway, she wanted to put some on a grave, they were her favorite flowers, etc. She wanted “just a few”, which turned out to be at least a dozen. The RA gave her suggestions about where the entitled woman could go to buy some. Then the woman started whining and manipulating. I zoomed off. The conversation made me sick.
I have been ruminating on the whole scene for a couple of days. The entitled woman feels no shame. That must be how she continues to get full food orders and her rent and car paid. It does not bother her to ask…no matter how much she currently has. Hearing NO hardly slows her down. Her convoluted reasoning and incessant manipulation makes people want to say yes just to get rid of her. Her entitlement makes people uncomfortable and unsure of what to say. They are embarrassed for her.
All my life I have struggled with needing help. My parents were unsympathetic. I only started sorting out my challenges once I got to college. Thank goodness healthcare was included free with tuition! I was brought up believing I was a slacker if I wasn’t able to keep up. The more disabled I got, the harder I tried. There were some really scary years. It was seen as a moral failing that I needed food stamps and Medicaid. Then I got disability through Social Security. What a hurdle! I have always been a political hot potato. Politicians like to villainize me. The world is going broke because I am disabled. It’s all a lie. I am not the burden. War and tax breaks for the rich are the burden…but that’s a whole other story.
The bottom line is that I need help. I need money to live on and healthcare to keep me as functional as possible. I don’t like needing the help. I would rather be able to help myself. This creates a never-ending conflict for me. I feel guilty for taking up space and money in this economic system. If it was not for faith in God, what would there be to keep me here? I need to feel that I have purpose and worth.
None of this helps me knowing how to ask for help, and when. No matter where I go, most people are accompanied by parents, children, husbands, wives, friends or paid caregivers. I am all alone. As I sit in the waiting rooms of all the places I go to for tests and treatment, it’s hard not to notice that it’s me, myself and I in the room. I have more illnesses than the average patient, yet way less support. What did I do wrong? How come I am so unworthy? I don’t know. I do know that I feel like a sad failure.
I never figured out “the rules”. People stuff confuses me. It’s easier to be a hermit, but sometimes it’s awfully lonely. That’s another reason I like wandering from place to place on wheels. I can get the illusion of closeness by interacting with strangers….and then I can zoom off. I don’t do well with the day to day interactions with the same old people. It’s better that I do not get to know people so much that I lose respect. I would rather believe the best. I am all too easily fooled and sucked in.
I flunk Husbands 101. The two men I married wanted stuff from me, but they did not have any desire to give me unconditional love and support. It was what I could do for them. Since I don’t expect the same back, I guess I didn’t get it. I feel guilty to get what I want. I realize this all stems from how I grew up. I could not trust people to meet my needs. Despite counseling and self-help books and working on it, at 60 years old, I have not figured out the secret to getting what I need or gracefully accepting help.
For a week now I have been trying to figure out how to complete my SNAP review for the year. Each time I followed their link, all I got was a form that was not interactive. Since I am signed up for paperless review, I knew something was wrong. Each time I tried to figure it out, I felt more hopeless. I knew it had to be dealt with before June. Today I started crying just thinking about trying again. I dreaded even looking. I finally figured it out.
My heart is still beating wrong. I kept waking up last night, struggling to breathe. Feels like a horde of pointy toed critters danced on my chest. Hurts. One of the vertical blinds fell off in my bedroom. I tried to shove it back up into the little thingy that holds it. Instant loud ringing in my ears, SOB, almost fainting and even more heart pounding. Whoa! What a rush. The chest pain is not letting up. I read about heart attacks, but I don’t think it’s that….I think it’s just irregular heartbeats. I wish I felt better. Nice weather today….hate to waste it!
All I have to do is drink water and my heart starts beating hard. What the heck? I think my body is trying to get all the methylprednisolone side effects…..
Along with its needed effects, a medicine may cause some unwanted effects. Although not all of these side effects may occur, if they do occur they may need medical attention. From Mayo Clinic.
Check with your doctor immediately if any of the following side effects occur:
- blurred vision
- decrease in the amount of urine
- fast, slow, pounding, or irregular heartbeat or pulse
- mental depression
- mood changes
- noisy, rattling breathing
- numbness or tingling in the arms or legs
- pounding in the ears
- shortness of breath
- swelling of the fingers, hands, feet, or lower legs
- trouble thinking, speaking, or walking
- troubled breathing at rest
- weight gain
Incidence not known
- Abdominal cramping and/or burning (severe)
- abdominal pain
- bloody, black, or tarry stools
- cough or hoarseness
- darkening of skin
- decrease in height
- decreased vision
- dry mouth
- eye pain
- eye tearing
- facial hair growth in females
- fever or chills
- flushed, dry skin
- fruit-like breath odor
- full or round face, neck, or trunk
- heartburn and/or indigestion (severe and continuous)
- increased hunger
- increased thirst
- increased urination
- loss of appetite
- loss of sexual desire or ability
- lower back or side pain
- menstrual irregularities
- muscle pain or tenderness
- muscle wasting or weakness
- pain in back, ribs, arms, or legs
- painful or difficult urination
- skin rash
- trouble healing
- trouble sleeping
- unexplained weight loss
- unusual tiredness or weakness
- vision changes
- vomiting of material that looks like coffee grounds
Some side effects may occur that usually do not need medical attention. These side effects may go away during treatment as your body adjusts to the medicine. Also, your health care professional may be able to tell you about ways to prevent or reduce some of these side effects. Check with your health care professional if any of the following side effects continue or are bothersome or if you have any questions about them:
- Increased appetite
Incidence not known
- Abnormal fat deposits on the face, neck, and trunk
- dry scalp
- lightening of normal skin color
- red face
- reddish purple lines on the arms, face, legs, trunk, or groin
- swelling of the stomach area
- thinning of the scalp hair
Other side effects not listed may also occur in some patients. If you notice any other effects, check with your healthcare professional.
I need to go to the doc’s office/pharmacy on Tuesday. I did not plan ahead when it came to refilling Plaquenil. I forgot today was a holiday. Good thing I had outdated hydroxychloroquine on hand. I looked it up and a new bottle lasts 3 years. I hope I got new ones 3 years ago 🙂
And look at the side effects of Plaquenil…
Get emergency medical help if you have any of these signs of an allergic reaction: hives; difficulty breathing; swelling of your face, lips, tongue, or throat.
Call your doctor at once if you have a serious side effect such as:
- muscle weakness, twitching, or uncontrolled movement;
- loss of balance or coordination;
- blurred vision, light sensitivity, seeing halos around lights;
- pale skin, easy bruising or bleeding;
- confusion, unusual thoughts or behavior; or
- seizure (convulsions).
Less serious side effects may include:
- headache, ringing in your ears, spinning sensation;
- nausea, vomiting, stomach pain;
- loss of appetite, weight loss;
- mood changes, feeling nervous or irritable;
- skin rash or itching; or
- hair loss.
This is not a complete list of side effects and others may occur. Call your doctor for medical advice about side effects.
Pfffftttt….hard to tell my normal from my weird. Aren’t pharmaceuticals grand?
This weekend, birds on the great Salt Lake were doing what birds do. A hail storm came along and killed a bunch of them 😮
This morning was a beautiful day 🙂 I went for a ride on TRAX….to check out the derailment. The building to the right in the article’s pic is where Best Buy is. Thank goodness the train ended up between tracks instead of going into the building.
I did not buy anything while out….but was tempted. I went in both Sam’s Club and Costco to see what the difference is. Costco wins by miles. Sam’s is dingy and dirty and subdued and almost empty. Costco was packed….and bright and way more exciting looking. No contest. I also went in the dollar store and Petco. Thumbs down for them, too. Stinky, dirty, empty. I went in Best Buy to gaze at flat screen TV’s, tablets and laptops. Very strange store. How do they stay in business? I never want to make that trek by wheelchair, ever again! One sidewalk abruptly has a telephone pole and fire hydrant blocking wheelchairs. Most of the sidewalks had no curb cuts and at least half of the trip had no sidewalks at all.
By the time I came out of Costco, there were very black clouds over the Wasatch Mountains. I decided to come home. Lots of confused and messed up folks thanks to the green TRAX line being derailed. People had to take a bus instead of the train…and there were no signs or directions. Just the stupid moving word sign that gave no info and was darned hard to read. FAIL! I could not help all the confused people, because I was one of them.
I sat outside my apartment building for awhile before coming in. It was nice out 🙂 A former tenant, who is a drug dealer, showed up to see my ex laundry lady. Just great. It was interesting to hear all the various versions of what happened this weekend. It’s a new guy who was on too many substances that flooded the place. He stuck a coat hanger into a ceiling sprinkler head and pulled the whole thing out of the ceiling. They say he got flooded with a thousand gallons of water (really???). That water soaked into apartments on both sides of him and the 2 floors below. All kinds of repair people have showed up.
Apparently fire retardant carpets cannot get soaked or they stop being fire retardant. The carpets need replacing and lots of people’s stuff got wrecked. And I thought the woozy woman hitting the fence was a nightmare! This is stacking up to be a real expensive mess. The manager needs to use better discernment when he rents out apartments. Some people are far too crazy and too impaired to live independently!
When I came in my apartment, it was a gorgeous day with blue sky and puffy white clouds. All of the sudden, it got as dark as night…and started raining. Soon it was coming down in sheets and we were encased in rumbly thunder. Then the hail started. It hit the bedroom window hardest. Seriously sounded like it was going to break the glass.
The hail piled up pretty darn quick….and the temperature dropped. Soon the sun was bright again, then there were more ominous clouds. The parking lot was almost dry already!
Tonight’s TV news says we got a half to an inch of hail, along with heavy rain and the whole storm only took 18 minutes! It was intense. I quick did a screenshot of local and regional radar just as it went over.
I feel bad for the states east of us. You’re next. Low 40 tonight…but freeze warnings nearby. High 50’s on Tuesday, mid 60’s Wednesday. high 70’s Thursday and mid 80’s Friday! We get to try out every sort of weather. It has been snowing in the mountains. There was a swift water rescue up Little Cottonwood Canyon, near Snowbird ski area, today. Wild weather.
New, tender tree leaves got shredded by the hail. Leaves blew every which way. The trees with red leaves that I can see from my chair are now more open and airy. That can’t be too good for the poor trees. I don’t remember wind storm after wind storm like this in other years. On a mountain near here, they got over 3″ of water…most of that at 12″ of snow per inch of water. Here’s hoping all the reservoirs get filled up this year. The nearby low mountains look lush and green.
I am sincerely wanting my West Nile Virus anxiety to be gone! I am definitely better. For a couple of years, any little frustration or hurt had me bursting into tears. I felt like crying several times while out and about….but I didn’t. I still get my usual overwhelmed when I go into Walmart, Costco and Sam’s Club, but it’s more of an annoyance than hindrance.
I can identify with this kid!
So….not everybody feels like that? Huh. Going to a big box store brings it back for me. I have to be in just the right mindset in order to go amongst crowds of people. Even if I want to be somewhere, the noise, movement, flashes of light and color, smells and unexpected bits of any of those makes me want to go far, far away and hide.
As a kid I would challenge myself to spend longer and longer amounts of time in places like the mall or at the state fair. Big box stores can quickly overwhelm me. I want to go sometimes, but then I feel like too much is happening.
When I go through the doors at a big place, I am instantly dizzy and disoriented. I force myself to go slow and look around. I lasted less than 5 minutes at each of the places I went today….but I went out and about! WNV made me regress. I overcame a lot as a kid…then the darn mosquito made me go through it all again. I would like to think that my West Nile Virus brain is calming down now. Please!
Steroids are a mixed blessing. Sometimes I feel calmer, sometimes more anxious. Sometimes I feel ‘roid rage. Plaquenil is supposed to take months to kick in. I am thinking the combo of steroids and Plaquenil is already working. All that time in the sun today…and I don’t feel lupus-y. Very unusual! And last night I did not have night sweats!
Beautiful sunset tonight! 🙂