Sunday night I switched back to the CPAP mask I got at my last sleep doc appointment. I hate it as long as I am awake, but love it when I am asleep 🙂 I also hate that when I woke up, my left nostril is sore and bleeding. I wrote to my durable medical supply company and asked if I am eligible for a new mask. My regular mask is flubbering. I seem to need a new mask every 5 months but I need to wait 6. All those night sweats take a toll.
Back in June, for myasthenia gravis awareness month, a woman made a video of all our MG faces and used Fight Song as the background music. I really like that song now 🙂
I didn’t have supper last night and went to bed hungry. I was just too tired to even microwave something. That made me unusually hungry this morning, so I made breakfast right away, instead of waiting until afternoon, like I usually do. Cooking was horrible, no good, awful painful 😦 My lungs are still on fire and the bottom of my ribs hurt. I realized I was accidentally holding my breath because of the searing pain. Not liking all this owie lung stuff lately.
After breakfast and after resting more than an hour, I dragged a chair over to a dresser that has been full of partially used and long expired medical goods. I was horrified at just how much was still in there. I had cleaned out most of the wound vac junk, but it got full again from the 2 times I needed IV antibiotics given to me by home health. That’s another racket. They send about 10 times what’s really needed and bill Medicaid a whole lot of money.
I was looking back in my blog to find out a date. I stumbled on this post from April 2013 during the pursuit. Wow! How prophetic! I had no idea how bad it was going to get 😦 https://wendythewanderer.wordpress.com/2013/04/28/this-reminds-me-of-my-feelings-lately/
There was a knock on my door this afternoon. The mailman. Just like every other time I have opened the door for him, my eyes went around in figure 8’s. He probably thinks I sit in here getting drunk all day :-p The truth is less sensational. He told me he doesn’t leave packages in front of doors any more. He said the guy across the hall had boxes stolen 😮 Made me wonder if anyone has ever sent me something I didn’t get?
Since I was standing, I got dressed and took out the third load of garbage in 2 days….and put more stuff on the free table. Each time I get rid of things, it’s a big ahhhhhhhhhhhh…… Kind of like when I could not stand the thought of all that tomato soup in my cupboards 🙂 STUFF I don’t want takes a psychic toll. I feel lighter and freer when junk goes away. YES!
I am very impatient. I want everything cleaned out yesterday. Instead I work on it a few minutes and then rest a few hours. I brought out another suitcase to put emergency food in. By sorting through the bathroom closet and then my camping supplies, I found what I needed for my 72 hour kit….except the food. Olive does not want me to pack up the green food suitcase.
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