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This is kind of long, but very, very interesting. It’s about being homeless and living in a vehicle. I have many blessings to count after being extremely low income and homeless part of the last year.
31 Monday Dec 2012
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This is kind of long, but very, very interesting. It’s about being homeless and living in a vehicle. I have many blessings to count after being extremely low income and homeless part of the last year.
31 Monday Dec 2012
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I went into Deseret Industries even if Rhett didn’t. I got a very new looking Whirly Popper for $4. They cost $25 new.
Just made my first batch of popcorn. It really does pop fluffier! I used the same popcorn in the microwave and got small, tough kernels with lots of clinkers.
That was fun! I wish someone were here to help me eat it and ring in the new year. Rhett’s asleep….
31 Monday Dec 2012
Posted concussion, lipodermatosclerosis, lupus, myasthenia gravis, Scary, Sick, West Nile Virus
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I slept much better last night and for a 3 hour nap this afternoon 🙂 But…I feel yucky.
Yesterday I had ringing in my ears most of the day. Sometimes it was so loud that other noises were drowned out! Today there is less noise, but even more pain. Once again, I am back to all the roots of my teeth on the left side hurting. My cheek and eyebrow are throbbing. There is pressure in my skull on the left side.
Reading about Hilary Clinton made me worried. What if that’s happening to me? Several people have suggested it. Along with those stories is talk of Nixon and his phlebitis. I had that for the first time more than 30 years ago. Blood clotting has been a problem for me most of my adult life. Sigh…
I was super dizzy yesterday. I knew I was being an idiot by moving furniture, but I was desperate for sleep. That got me sweating and I sweated like crazy all night and most of today. I am sooooo tired of all my symptoms coming and going! But I am thankful for the reprieve when they go!!!
I got all ready to go to DI to buy a recliner, got Rhett dressed and out to the RV. Then he refused to get out at DI. An hour or two later he said he didn’t know why he did that, and could we go back? Ummmmm….NO.
I get more alarmed each day by some of his behaviors. I need to get him an appointment with a good neurologist who specializes in traumatic brain injury. He has been having more frequent and stronger hand tremors. Sometimes things he does or says are totally off the wall. His stuff happens in cycles, too. Very worrisome 😦
Well…January 1st is Rhett’s birthday. The week after is mine. Rhett has decided that he wants to eat Greek food for his birthday. Mmmmmmm……
30 Sunday Dec 2012
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Deseret Industries is open Monday from 10 to 3. I hope we can find a suitable recliner….then figure out a way to get it home. The space is now cleared and waiting!
Not having enough room to sleep has made me crazy. I thought and thought about how to get or make another bed. Then I realized I might have the raw materials on hand!
I measured and moved most everything. I slid together the patterned chairs. I took the 2 foam pieces off the big bed and stacked them on the chairs. I put the ottoman where my feet go. I put a sheet over the whole conglomeration.
Now there are two beds. Maybe someday we can get one big one?
I think I would like a piece of plywood across the two chairs, the width of the foam. Now I also need to get a full sized piece of foam for the bigger bed.
Tonight I will try it out for comfiness. Rhett will miss me. I am hoping for some decent sleep tonight. Please….
30 Sunday Dec 2012
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Each time I get into bed, I am acutely aware of how small a full sized mattress is for two large people. Almost every time I wake up, Rhett is lying on some body part…usually my right arm and shoulder.
Ever since West Nile Virus, my right shoulder has hurt. Sometimes it’s excruciating. There is no way to position myself that takes the pain away. Having a big guy squish it is not helping. I long for a nice big bed…or maybe, gasp…two beds.
I never ever get enough quality sleep. Much of the night, part of me is hanging off in space. Men are like cats and dogs…they expand to take up all available flat space. It’s amazing to me how creatures in bed feel like giant octopi, at least 8 arms/legs going every which way.
Ha ha ha…just found this English article Ten reasons why you need a bigger bed
29 Saturday Dec 2012
I pretty much followed the directions, but made the dough in my bread machine.
For the pizza, I covered the dough with a small jar of pesto sauce, used a bag of turkey pepperoni, diced up an onion, covered with Parmesan and mozzarella and put olives on top. I let it bake half way and pulled the parchment out for a crisper crust.
The garlic bread is brushed with butter, sprinkled with 6 chopped up garlic cloves, then sprinkled with a dry garlic bread mixture I bought for 99¢ at the NPS store. The pepperoni was 69¢ and 2 pounds of mozzarella was $3.99 😉 I put the cheese on lightly as I wanted this to be more snacky.
For lunch I made Chinese cabbage salad. I finely sliced a head of Chinese nappa cabbage and grated a handful of carrots and put these in a big bowl. Then I used my fist to smash up a package of ramen noodles and added that.
In a separate bowl I mixed together 1/3 cup olive oil, 2 Tbsp rice vinegar, a tsp of sesame oil, 2 Tbsp turbinado sugar plus some salt and pepper. I cut up a package of deli mesquite turkey and mixed all together. The bowls were topped with almond slices.
At the NPS store the turkey was 50¢, 2 lbs of baby carrots were 79¢.
After lunch we had bowls of salted caramel with pretzels and chocolate ice cream ($1.49 at the NPS store). Drizzled over the top was some honey caramel sauce I made a week or so ago.
In a saucepan cook 1/2 cup honey,1 stick butter, 3/4 cup brown sugar. Stir constantly and boil for 2 minutes. Add and stir in 1 can of sweetened condensed milk. Store in fridge.
29 Saturday Dec 2012
Posted Amusing, Funny, Gross, myasthenia gravis, Sick
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http://sickofmg.blogspot.com/2012/12/if-old-mcdonald-had-mg.html?m=1 I guess I was in the right mood to find this funny and touching :-p
29 Saturday Dec 2012
Posted Disappointment, Sad
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Too much stuff is going on in my life. I tried to fix things, I tried to just endure others. Now all I want to do is pretend that nothing matters. I feel like going numb, turning off my feelings and retreating to someplace in my head where the pain and frustrations don’t exist.
I tend to try too hard and take things to heart. Part of me is just plain sick of “other”. If troublesome people can’t act decent, I am ready to mentally vaporize them and click IGNORE.
Remember that thing on TV where people would look at someone in the distance, use their thumb and first finger to pretend to squish the offender? That was while saying something like “I crush your head”.
It’s a childish way to show displeasure while wishing the problem was crushed. No, I don’t want to vaporize or crush real people, but I am ready to do it symbolically! I am tired of hurt and dramas. I wish I could just be cold and uncaring, but that doesn’t work for me. I am almost 57 years old and I still don’t know how to deal with contentious people.
As is true with all issues, whatever lessons we need to master, the situations pop up over and over until we learn. I don’t want to learn, I just want mean people to dry up and blow away, without confrontation or work on my part.
Ahhhhh….wishful thinking in my dream world. I still don’t feel like an adult, and in some circles I am a senior citizen. Sigh…
28 Friday Dec 2012
Posted Grateful, Hope, lipodermatosclerosis, Mercy, myasthenia gravis, Pictures, Scary, Sick, West Nile Virus
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My eyes are drooping from MG, my cheeks are rashy from lupus and I look way older lately from so much illness and stress.
I wanted to spend the day doing as little as possible. Ha!!! The universe is still laughing.
At some point after noon I realized Rhett’s second cellphone bill was due. This month I had commited to paying through the store we got the phone at. From now on the monthly charge for unlimited telephone is $27.33. That’s $25 plus taxes. Waaaaay better than the stupid Verizon phone he had!
As long as I was there I needed to pick up my meds at the nearby pharmacy. Then I went to Trader Joe’s to get my $2 overcharge back. Since I was on a roll, we also went to the NPS store.
Back on the 13th at the NPS store, I was charged for 36 bags of candy instead of 6. Each bag was 39¢. The total refunds came to $12.26. Then the manager or owner or someone like that came over and gave me a $10 gift certificate to make up for their mistake. Decent! An entire cart of food only cost around $8 out of pocket. Great haul 🙂
The whole expedition was too much for me. I was again sooooooo weak! After I put away the groceries, I have mostly just sat here trying to recover. Everything hurts.
At this moment, nothing is horrible. The leg and head are bearable…sort of. That’s a good thing, right?
28 Friday Dec 2012
Posted Disappointment, God, Heavenly Father, Love, Mercy, Sad, Scary
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I have been wrestling with several issues that I would like to talk about on my blog. This has been going on quite awhile.
For me, writing about things is a cathartic act. It’s my way of moving things from my head to the outside world. It’s my pressure relief valve so my head doesn’t blow up.
While thinking about these issues, I read the above article. When I got to number 12, I had my answer. But I am still struggling.
What is it about me that wants to be painfully fair to other people, even when they don’t extend that courtesy to me? Why am I reticent when they aren’t.
If I don’t have anything nice to say, don’t say anything?
How do I handle blatant nastiness and unfairness? I want to talk about my feelings, yet I am censoring myself when the other people don’t.
What to do…what to do?????