I got up at 5 AM to take meds, went back to bed at 6 and got up for real after 10. By then, last night’s rain had mostly dried up and the sun had come out. My whole left arm continues to be very, very painful. I wish I could think about something else…but the pain is so intense, that it cannot be ignored.
So….I have a working power chair, but not a working body. I considered venturing out, but the farthest I went was the mail box and garbage. Whoop, whoop! A woman I know and then the manager, stopped me to say the guy who fixed my chair was asking about me and wondering how the chair is working. I told them about going around the building last night.
My biggest excitement of the day was making brunch and eating supper š Brunch was made from eggs, onion, tomato and zucchini (all free), plus a sweet potato (.30), mushrooms (.25), half an avocado (.37) and 2 slices of tomato basil cheese (.40)…served with Hatch chile salsa (.35). Total $1.67.
Supper was a sweet corn tamale ($1.25), half an avocado (.37), sour cream and salsa (free) for $1.62. Even only eating 2 meals and having all that free food, I went over my $2.93/day food allotment. The meals combined cost $3.29. And that didn’t include my snacks of fresh pineapple in the morning and hot chocolate at night.
I am very grateful that I no longer have Meals on Wheels. I can nap when I want and eat when I want…but best of all, I am not ingesting those nasty chemicals š
That’s pretty much my whole day. I hardly remember it….except for the pain….lots and lots of pain. I hope the only reason I am this weak is the belly infection and/or arm pain making my MG mad. I was pretty darn weak and shaky today.
You could be weak because of all the stress that you have gone through lately. When I get stressed and it is over, it takes me a while to get back to normal. You have used up all your energy reserves.
I am messed up now, keep forgetting to take my blood sugar and seems like there is way too much to do. James suggested that get off the computer in the evening and watch TV. I did that last night and felt better. I watched the demo debate and tonight there is the repub debate,. I find it very difficult to count the carbs because I am always trying to catch up on something. Today, have to go the dermatologist appointment and then go to get the groceries with James, This time we have to go to Wal mart and that will be a lot of walking so tired already.
When I say weakness, I am talking about MG weakness 99% of the time. Infections always bring it on even worse…..as does pain, for whatever reason. It’s this weakness that turns into MG crisis…like I went through a year ago. I am deperate for IVIg!
http://www.mayoclinic.org/diseases-conditions/myasthenia-gravis/basics/symptoms/con-20027124
I was surprised about my blood sugar yesterday. It stayed between 120 and 128, no matter what I ate. I am not complaining š